Because we have so many cleft lip and cleft palate friends
who will be having this procedure in the near future,
and we were unable to find much information from
other families -
with Jailyn's permission,
we thought we would post about her experience or
surgery and recovery.
"If it helps someone else not be afraid,
then let's share."
I love my girls heart!
Jailyn's doctor preformed a bone graft from her right hip,
to rebuild her upper gum,
that was in three sections due to her bilateral cleft.
He also added fat, from her tummy,
to build up her lip.
(not sure how he found any fat on her! haha!!
I would have gladly had been her donor!!! :)
A month ago, to prepare for Jailyn's mouth,
she received an expander.
Two months ago she had had three teeth extracted to
make room for her surgeon to add the bone.
Beginning with the expander,
she was on a "soft foods" diet.
We took this very seriously - preparing her for surgery.
She was in surgery for 4 hours.
Our surgeon came to get me when Jailyn was taken to recovery.
He said everything went well,
though he has his fingers crossed that Jailyn doesn't have to
go through this again.
He had told me the day before that this surgery has
90% success rate -
He said that her cleft was larger than he expected,
so he is hoping and praying that this surgery will be all she needs.
After surgery, Jailyn came out of the anesthesia well.
No sickness from the anesthesia, thankfully!
Our anesthesiologist gave her 2 different types of anti-nausea medications.
This worked well.
Thank your Jesus!!
When we got to our room they wanted to get her drinking apple juice
and eating ice cream.
She was excited about the thought of ice cream!
But it was hard for her to eat anything.
She had a few spoonfuls but that was all she could do.
That morning Jailyn has asked to bring her water bottle.
Trying to keep her calm and give her whatever she wanted,
I agreed - though I didn't think we needed it.
Boy was I wrong!!
We were very thankful for this water bottle as it was the only
way for her to drink.
She could not use a straw, or drink from a cup -
the swelling was too much.
Throughout our time at the hospital,
even after we had packed and ready to go -
Jailyn asked the nurses to suction blood out of her mouth.
The bleeding wasn't too bad and didn't upset her stomach,
but there was enough to bother her.
We laughed at how Dad, Brady, Conner, Donovan and Jorja
would have freaked about all that Jailyn had been through.
She is one tough chicka'!!!!
(we shared this with the family and they all agreed that
they would have freaked out! It's good that we all know our weaknesses! :)
Bone graft -
the incision looks like this!
Much larger than I was ready for.
Jailyn had an On Q medical pump tube -
that continuously fed pain meds to her hip for 5 days.
When the pump was ready to come out -
we were able to take it out by ourselves.
Thankfully big sister, Kenzie, is planning on going into medicine,
and loves this stuff! or I would have
been calling on one of my nurse friends!
The first few days the major pain was in her hip.
She was very nervous about the tube feeding the pain meds.
Sitting up and walking around scared her,
so we took it at her pace.
Healing emotionally will help heal physically,
so we focused on the emotional side.
Even though the hospital nurses had their check list of
things Jailyn needed to do before we would be released from the hospital -
you know, drink more liquids, eat a few cups of ice cream...
Our surgeon totally understand kids,
especially adopted kiddos,
and knows that recovery at home is most important.
He came to see us the morning after surgery and asked Jailyn,
"Jailyn, you ready to go home?"
Jailyn answered, "Yes, sir!"
and he went to sign her papers and send us home!
Liquid and major soft diet for 6 weeks before our post-op check up.
We'll see how creative we can be with calories and protein
for our brave little girl!!