First, we want to thank y'all for all the texts, phone calls,
emails, fb comments
of encouragement and prayers!
This was a very scary surgery but
even more scary if he didn't have it.
A week ago, Hagan woke up in the morning in tears
complaining about his neck.
We are still learning Hagan's personality,
so we didn't know what to think about his complaining,
was it really his throat that hurt and he was saying his neck,
or did he just sleep wrong on his neck,
or was it compression of the spine
that is common for people with Achondroplasia Dwarfism?
We had x-rays taken soon after he got home,
and no compression was seen.
Feeling confident at that time, we went on with all of his other treatments...
As last week continued,
Hagan acted more and more tired,
falling asleep at random times,
not being able to hold his head up,
and loosing coordination.
Between our awesome family doc (and her office)
and our doc at Scottish Rite
we decided an MRI was in order.
Unfortunately, Scottish Rite was not able to get us in
for an MRI -
so they sent us to Children's Hospital ER.
Hagan and I tucked everyone in bed on Monday night
and came to Children's.
Thinking we would be back by breakfast Tuesday morning.
At about 3am, after more x-rays that didn't show anything,
they told us that they want to do an MRI
(just what I was asking for all night)
but they don't do MRI's at night -
so we would be admitted to neurology and get on the MRI schedule.
We were in our new room by 6am,
and then in radiology by 7:30am.
Hagan had to be sedated, and intubated for 2 hour MRI.
We are always nervous when he is sedated due to his
problems with apnea.
We waited and waited for the results.
Praying and praying we would make it home to pick up
the other kids from school.
Around 1pm we were brought to x-rays for a few more pictures.
My thinking was that the neurologist found something
and wanted some more information.
Though we were told, by someone else, the MRI looked good.
At that point we gave up being able to pick the kids up from school.
Both Hagan and I were so sad.
He sooo misses his brothers and sisters!
Around 4pm two doctors came in,
one said, "Let's go over what we have."
and the other turned the volume from the TV off.
I knew then that it wasn't good.
As the doctors explained,
I admit I don't think I heard much of what they said.
Especially, when they said,
"Surgery tomorrow morning and y'all will be here for 2-3 days."
I just broke down.
Even though I knew Hagan needed this surgery -
I hadn't prepared my family for mom to be gone for the week.
There was still laundry to be done.
I only had meals for a few nights.
I would have organized school lunches better...
sooooo much I would have done!
When I asked the doc if had to do it tomorrow,
or could we do it next week?
(not that next week would really be any better - but at least I could prepare -
cause I'm like that.)
He said nicely, "That would not be a good idea, this is very serious."
I knew it was, I have had friends whose children have had this surgery,
but I had to ask.
After talking to Bryan and coming up with a game plan,
I felt much better.
Now all I needed to do was take care of Hagan,
and that's easy!
We slept well and snuggled all night.
This morning my scared little guy was wheeled away from me at 9am.
Hagan was in prep and surgery for longer then 5 1/2 hours.
The planned surgery was (in very layman terms) to enlarge the hole
of the skull where the spinal cord enters the brain.
The MRI showed that the spinal cord was compressed.
Doc widened the hole,
decompressed the spinal cord...
but also had to remove bone that had fused to
the brain stem.
I'm telling you - Hagan is a miracle boy!
We are hoping this surgery will not only relieve the compression but
help his sleep apnea too.
So, tonight we are in ICU.
Hagan did really well the first few hours,
even had some chicken broth and jell-o for dinner.
Pain has set in and the fear of having IV's in his
hand and feet is overwhelming to him.
A CPAP machine is being used tonight to help
with Hagan's apnea.
Thinking this is going to a busy night,
with lots of medical visitor in our room.
Praying Hagan gets the rest he needs to recover.
Thank you again sooo much to y'all
for praying for our little man!